Baby Christian

Baby Christian
Christian was born with two very rare congenital heart defects; Hypoplastic Left Heart Syndrome (HLHS) and Endocardial Fibroelastosis (EFE) He will require three (two down, one to go!) open-heart surgeries to sustain life. He is a miracle and a blessing. We are so greatful to have him here with us. Thank you for stopping in. Lilypie 2nd Birthday Ticker

Saturday, December 29, 2007

More cute pictures of the boy!





I wanted to show that Christian did not sleep ALL of the time!
Christian is doing real well. He only gained an ounce last week but hopefully that will improve soon. He needs to get some meat on his bones before his next surgery in March.
He is getting quite the personality now. He only loves his mama when I am around. I hold him and he cries. Oh well, I torture him more and keep on holding him! And I kiss him! HORRORS!!!!!!
Nicole and Bryan and not suffering too much from sleep deprivation as Bryan's mom helps out in that department! They are very lucky to have her around.
That's all for now. I am going to dinner with a friend so I need to get ready. Enjoy the pictures!
Grandma Whee

Wednesday, December 26, 2007

Baby's First Christmas



Christian had a great Christmas! Of course we did not spoil him at all! LOL But we had a great time none the less. We ended up opening some of the presents on the 22nd since some relatives were leaving on the 23rd. I think everyone had a great time and got many nice gifts.
Christian seems to be doing better since a switch to soy formula. He is not as gassy and does not cry as much. I cannot wait to see how much of a weight gain he will have now that he keeps things down better.
Bryan and Nicole got a bit of bad news just before Christmas. The Airline that hired Bryan went out of business. So Bryan has been filling out applications and sending resumes. So, if you know of any flying positions please let us know.
So, that is about all from this end. Thanks for popping in.
Grandma Whee





Tuesday, December 18, 2007

A Good Week!






While we are all adjusting to having a new baby around I fell behind in my blogging! Trust me when I say I have heard all about it! But today I made it a point to update and add some new pictures. I hope you all enjoy them.

Christian got to visit with Santa last week. Of course the photo I have is a PDF file and I need to figure out how to convert it. I will post it when I learn that.

Christian had a doctors appointment today and had gained 3 ounces! Good Boy!!!!! He is so tiny now since the surgery. He is up to 6 pounds 11 ounces. Hopefully he will keep up the weight gaining and get healthier all the time. He is looking real good.

Thanks for checking in. I will work on posting more often, but no promises...

Grandma Whee

Friday, December 7, 2007

We are HOME!!!!!




Day before yesterday Dave and I went to Portland to help bring the baby home. What a wonderful day it was! The pic out the windshield is Dave and I driving behind Bryan and Nicole when we were leaving. It was such a wonderful feeling!
Bryan went back to work yesterday. I know it is killing him being away from the family. I am not sure how long he is going to be gone this time. Thankfully Bryan's mom is home in the evenings to help out. I am going over for the day today to help reorganize things and MAYBE hold the baby a TINY bit. HAHA ! I plan on holding him a ton today. He is just so tiny now and fragile looking. Hopefully he stays healthy until his next surgery. Ohhhhh, he is also getting circumcised on Monday. Nicole asked me to be there with her for that so this could be interesting! I have never seen that done before. Hmmmmmm... should I take pictures???? When he gets older he may resent me ever owning a camera!
Anyway, off to the shower for a good soaking before heading into Bend. Thanks for stopping in. Only expect cute pictures and good news from here on out!!!!
Grandma Whee

Cute pictures




How are these for some cute pictures???? RoseMarie Photo came to the hospital and took a ton of pictures. They did this as a courtesy for families with babies in the intensive care unit. This was all for free. So if you ever need pictures and you are in the Portland area look up RoseMarie Photo. You will not get it for free, but they are very reasonable.


Saturday, December 1, 2007

Reposted and some new.






Sorry about some repeats of photos but I cannot keep things straight these days. I am still having internet probs but will post even more later...
Grandma Whee

New stuff






Well Christian is doing better and better every day. I know I have not posted in awhile but my computer is not working well for me now. Absolutly hate this free wireless connection! I am going to end up plugged into the wall again!
Anyway, I will be posting more pictures this afternoon. But here is the scoop... Christian has been moved back to the other hospital for the remainder of his stay. He now has no tubes other than his feeding tube. He got everything else removed yesterday. Obviously these pics are from before yesterday, but I was behind! He has to learn how to eat again and then gain a bit if weight and then he can go home. So we are looking at a week or 2 at best. But all in all he is doing great. The docs are not concerned at all about the clot he had in his heart nor the collapsed lung and fluid. I am so please that he is doing so good now. For awhile it was something bad everyday. A bit depressing during that time.
I think I will make the trip up there next weekend to hold my little guy. I sure do miss him. Ohhh, I miss Nicole and Bryan too but they do not let me hold them and stroke their hair.
Thanks for checking in!
Grandma Whee