Baby Christian

Baby Christian
Christian was born with two very rare congenital heart defects; Hypoplastic Left Heart Syndrome (HLHS) and Endocardial Fibroelastosis (EFE) He will require three (two down, one to go!) open-heart surgeries to sustain life. He is a miracle and a blessing. We are so greatful to have him here with us. Thank you for stopping in. Lilypie 2nd Birthday Ticker

Sunday, April 20, 2008

WE ARE HOME!!!!!

Well, with all of us cracking the whip over some heads today we were finally discharged about noon. We went to lunch and then hit the road. We pulled into our (Grandma Whee and Pappy's) house at 5:15 and then Christian and fan club had another 25 minutes driving till they got home. It sure is nice to be back. I know we have more pics but will post them later. Lot's to do to get ready for work tomorrow.

Thanks for checking on us!

Grandma Whee

Saturday, April 19, 2008

Still here

Pappy and Kady playing with Christian.
Grandma Whee playing with Christian
It's tough being so stinkin' cute!
Plum tuckered out!

The view of Portland from the hospital


Well, we ended up staying another night. Christians doctors got a bit side tracked and forgot to lay out the discharge orders for us. SOOOOO hopefully tomorrow will be the big day. There is a ton of snow on the pass and of course we do not have our snow tires on any more. I am sure it is going to be a long drive home. I will let you all know what happens tomorrow...

Grandma Whee

Friday, April 18, 2008

Like It Never Happened!

Christian is doing wonderful! Only three days after surgery, his is almost back to his normal self; smiles and all! We took a trip with Gramma Whee to the 3rd floor cafe this afternoon and it was so much fun to have him with us! We were supposed to be heading home today, but due to some very minor fluid retention, he has to stay at least one more night. They did a chest x-ray, an echo and a blood test to see if anything was wrong, but all came back negative! We think that it was just a way for the nurses to keep him here. They have all fallen in love with Christian. Please leave a comment to say you stopped in! We'll update again either tonight or tomorrow.
Nicole

(Pictures aren't uploading at the moment, but I will add them as soon as I can)

Thursday, April 17, 2008

Thursday 11:30 am

Christian had a rough night. Not always him though. His IV monitor keep alarming and waking him up. He kept bending his arm and it would slow the flow setting off the alarm. So I got about 30 minutes of sleep. I am pooped.

Christian was able to get off the supplemental oxygen at midnight last night. Whoo Hoo! Now, this morning they have taken him off of the IV drip. They still have a small IV port on him but that is just to give him his meds when he needs them. He is still hooked up to the heart monitor but that is to be expected. He still has not pooped but he has tooted ALOT and boy are they killer ones!

This morning he was having a hard time and crying non-stop so I decided that he needed to be held. The nurse helped get him and all his wires and as soon as I picked him up he stopped crying and went to sleep. It was so sweet!

We went for chest x-rays a bit ago. He even sat upright for those and did not cry as long as he could see me. Another sweet time!

Nicole and Bryan came back at 11:00 well rested and ready for a day with the boy. Bryan is holding him right now and enjoying every minute.

So, that's it for now. I will do pictures later and post more news...

Hugs!

Grandma Whee

Wednesday, April 16, 2008

And we have moved again!

We are now on the recovery floor of Doernbecher's. Christian is doing so good! Everyone is amazed at how fast he is recovering. His color is totally different from before. He is now a nice pink baby as opposed to a blue baby. It is so nice to see.

Be sure to leave your comments so we can know who all popped in to see us!

Grandma Whee

Look what I found this morning...


This morning Christian has made a remarkable move to being better! After taking out the breathing tube last night, they took out the drain tubes this morning along with the IV they had in his neck. He was crying and as soon as Nicole came in he quit. Now he is enjoying being held by mommy. I am planning on spending the night with him to make sure he has someone familiar with him. But he sure looks good! He will be moved up to the 9th floor later today for the remainder of his recovery. I cannot tell you how excellent he is doing and looking! Everyone is amazed! I will post later today when we move and give you all the new room number...

Grandma Whee

Tuesday, April 15, 2008

Extubated!

Christian was extubated tonight at 8:30! He is doing great! He even let out a nice toot! (That is a very important thing in the medical community.) He is still crying a lot as you can imagine. At first there was no sound, just tears, but now that the breathing tube is out, he makes little hoarse cries. It is the saddest thing EVER! He is waking up more and more, but they keep him pretty drugged up so that he doesn't get carried away and pulls out tubes. His little face is so swollen, it doesn't even look like him. They said that the swelling will most likely be worse tomorrow as will the pain level, but after that, things should be getting better. We'll post more pictures and updates tomorrow. Good night!
Nicole and Bryan