Baby Christian

Baby Christian
Christian was born with two very rare congenital heart defects; Hypoplastic Left Heart Syndrome (HLHS) and Endocardial Fibroelastosis (EFE) He will require three (two down, one to go!) open-heart surgeries to sustain life. He is a miracle and a blessing. We are so greatful to have him here with us. Thank you for stopping in. Lilypie 2nd Birthday Ticker

Sunday, May 25, 2008

No Pictures, but here is some news

Can you believe that I am just now looking at the blog after a few weeks??? Here are some updates for you...

The teeth look great! Two big un's on the bottom! Sharp little suckers too!

Porter came home! He was wandering for 8 days! He came home the same day Bryan got home from training! Weird! He was a bit skinny but none the worse for wear.

I have not seen anywhere on the blog but Christian did have a small stroke around the 26th of last month. He is recovering quickly and you cannot even notice anything happened. He has some left side weakness but that is improving everyday. Where he had no movement he now does and he grips with his left hand now but it is just a bit weak. Other than that he is doing great. He goes to the doctor Wednesday and we will see if he gets to take his nose noodle out. He will be so much happier without the feeding tube!

I went on Friday and kidnapped Christian. He got to spend the night with me and Pappy without mom and dad! He did great. Slept like a baby. Up every 2 hours. But he would drink a bit of his bottle and go right back to sleep. He was so wonderful. Bryan and Nicole came over Saturday night to get him and also to enjoy a BBQ here. I made terriyaki chicken out on the grill. I knew that Bryan is not a huge chicken fan so I made him burgers.

Anyway, that's about all for now. I will work on some more pictures. I actually have some but I am on hubby's computer and it for some reason does not like to load pictures. So, I am sure Nicole will add some soon.

Thanks for popping in and checking on us! We love you all!

Grandma Whee

1 comment:

Denise said...

I am glad to hear that Christian is doing better and sorry to hear that he had a stroke. It sounds like he is recovering nicely from it though. Thanks for the update.