Baby Christian

Baby Christian
Christian was born with two very rare congenital heart defects; Hypoplastic Left Heart Syndrome (HLHS) and Endocardial Fibroelastosis (EFE) He will require three (two down, one to go!) open-heart surgeries to sustain life. He is a miracle and a blessing. We are so greatful to have him here with us. Thank you for stopping in. Lilypie 2nd Birthday Ticker

Sunday, September 23, 2007

Sept.21st Appointment

Well, as we have discovered not all appointments give us good news. Like this last one. After the echo and the ultrasound Dr. Rice came in and informed us that was once again a little bit of backflow through Christian's Mitral valve. His aorta, while allowing some flow was very constricted and not well enough to support life. The left side of his heart was smaller yet and will continue to shrink until it's progress is stopped surgically. He is definitely going to begin the 3 surgery procedure a few days after birth to rebuild the aortic arch and descending aorta. That is so much for a little guy to go through. But we are all pulling for him and know at some point he will be a normal little boy.

Bryan left this morning for Montana to attend the ground school for the airlines he was hired by. He is due to be home on November 2nd. That is good because they are wanting to induce Nicole anywhere from November 4th to the 11th. Perfect timing.

Anyway, that is about it for now. I will post as things come up...

Grandma Whee

1 comment:

Denise said...

Sorry, you didn't get good news at this appt. I am keeping him in my prayers.