Baby Christian

Baby Christian
Christian was born with two very rare congenital heart defects; Hypoplastic Left Heart Syndrome (HLHS) and Endocardial Fibroelastosis (EFE) He will require three (two down, one to go!) open-heart surgeries to sustain life. He is a miracle and a blessing. We are so greatful to have him here with us. Thank you for stopping in. Lilypie 2nd Birthday Ticker

Sunday, September 9, 2007

Sept. 7th doctor appointment

Well, we just never know what to expect when we go to the doctor. Usually bad news or even worse news. That was not the case Friday.

Thursday evening we headed north to Portland. A nice 3 and 1/2 hour drive. We got a hotel room and relaxed for the night. Friday morning we were at Doernbecher Children's Hospital for another huge round of tests, meetings, and stress.

Nicole had a fetal echo cardiogram first thing. Then Dr. Rice came in with this strange look on her face. Immediately we thought the worst. Then she says "We are a bit confused with Christian's heart. It is not doing anything that we expected." Again we thought the worst. She followed by saying that the mitral valve no longer had the backflow problem like it had every time previously. Now was the valve thickening and not allowing flow or was the valve strengthening and that was the reason for no backflow? She did not know and would not know until Christian is born. Another perplexing thing was that now the blood was going through the aorta pretty well where before it had not been flowing but just a trickle now and again. Very strange all around let me tell you! We met with the cardiac surgeon and he was very optimistic that Christian may not be as traumatised by surgery if his flow is improving and may even need less invasive procedures later on. Good news! So we left with our hearts being a little lighter.

Anyway, we did get some more cute 4-D pics of Christian but I do not have them in my possession yet. I will put some on when I do.

Thanks for checking in on Christian. It does look like he will be making his appearance in 6 to 8 weeks.

Grandma Whee

4 comments:

Anonymous said...

When I prayed and prayed for a miracle, I never thought one would come my way. I've learned never to doubt that someone greater than yourself is looking out for you. Miracles do happen.

nwscrapmom said...

Wow. Well said... never doubt that someone greater than yourself is looking out for you. Praise God! I am so happy to hear of this latest news!

Denise said...

What great news!! I know there are still a lot of unknowns but it looks like things are looking up. The power of prayer is increadible!

Anonymous said...

Sounds like some good news after sooooo much bad news. Hope the good news continues. You are in my and Kennedy's hearts and thoughts.