Baby Christian

Baby Christian
Christian was born with two very rare congenital heart defects; Hypoplastic Left Heart Syndrome (HLHS) and Endocardial Fibroelastosis (EFE) He will require three (two down, one to go!) open-heart surgeries to sustain life. He is a miracle and a blessing. We are so greatful to have him here with us. Thank you for stopping in. Lilypie 2nd Birthday Ticker

Wednesday, April 22, 2009

Getting BIIIIIG!

Hello friends! Is this weather not awesome!? We have made the most of it by spending plenty of time out in the sun looking like white sunblock monsters! Christian loves playing outside... it's almost like pulling teeth to get him back inside! We had to go visit Dr. Chunn, Christian's pediatrician... turns out that our little man has acid reflux. Seriously, if it's not one thing with him, it's another... poor guy. So we have another medication to add to his list. There really isn't too much to report right now... I can't complain though. A calm life is a less stressful life in my eyes! We hope that every body is well and in good health.
Mommy

Very special thanks to Jessica Coleman for taking such beautiful pictures of my son!










He is so beautiful.










3 comments:

Denise said...

Those are gorgeous pictures. He is a handsome little man. Sorry to hear about the reflux but hopefully the meds will work.

Anonymous said...

I left a comment on another page, but just in case you don't see it, i thought I would write another. My name is Devon and my daughter recently had a heart transplant and is still on a feeding tube and refuses to take anything. I was wondering if you knew of any ideas or tricks that worked for your son and getting him to take onto food??? I am searching for any advice. My website for her is www.caringbridge.org/visit/karleeannjenkins and my email is devon460@yahoo.com. Thank you for ANY advice!

Mom said...

Just was checking in to see how you all are doing and how Christian is doing. Thanks.

(A regular reader.)