Mommy
Very special thanks to Jessica Coleman for taking such beautiful pictures of my son!
Christian was born with two very rare congenital heart defects; Hypoplastic Left Heart Syndrome (HLHS) and Endocardial Fibroelastosis (EFE) He will require three (two down, one to go!) open-heart surgeries to sustain life. He is a miracle and a blessing. We are so greatful to have him here with us. Thank you for stopping in.
3 comments:
Those are gorgeous pictures. He is a handsome little man. Sorry to hear about the reflux but hopefully the meds will work.
I left a comment on another page, but just in case you don't see it, i thought I would write another. My name is Devon and my daughter recently had a heart transplant and is still on a feeding tube and refuses to take anything. I was wondering if you knew of any ideas or tricks that worked for your son and getting him to take onto food??? I am searching for any advice. My website for her is www.caringbridge.org/visit/karleeannjenkins and my email is devon460@yahoo.com. Thank you for ANY advice!
Just was checking in to see how you all are doing and how Christian is doing. Thanks.
(A regular reader.)
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