Baby Christian

Baby Christian
Christian was born with two very rare congenital heart defects; Hypoplastic Left Heart Syndrome (HLHS) and Endocardial Fibroelastosis (EFE) He will require three (two down, one to go!) open-heart surgeries to sustain life. He is a miracle and a blessing. We are so greatful to have him here with us. Thank you for stopping in. Lilypie 2nd Birthday Ticker

Monday, April 28, 2008

First Trip To The Ranch


Christian and Gramma Sharon with Quinn



Me getting back in the saddle!


Christian awe struck by all of the  "big doggies"


Kisses for Quinny!


Christian and I went with Gramma Sharon to visit her horse Quinn. It was 80 degrees and perfect for riding! It was a bit too hot for Christian at first, so he go to lounge around in his diaper while Gramma and I took turns riding. We all had a blast! The weather cooled a bit and the wind picked up, so we called it a day and Quinn back to groom him and let him back out in the field. Christian had sooooo much fun! He loved petting the horses and even gave Quinny a kiss! It was adorable! After a warm day at the ranch, we decided to grab some dinner at Applebees and then settle down for the night. 
Grammy Whee left for her cruise yesterday, and Great Grandpa Rex is in town. I think that I'm going to go visit Bryan in Denver this Friday and come back Sunday. Christian can't fly for another 4 weeks. But after that, we plan on doing a lot of traveling this summer. We're planning on visiting at least Hawaii and D.C. Free airline tickets are great! 
Christian is trying to pop his first tooth through... and he's been such a gem as you can imagine! He may only have half of a heart, but boy his lungs sure work great! He is eating solid foods a couple times a day now and is doing so well with it! What a big boy! We'll talk to you guys soon! 




Thursday, April 24, 2008


Mmmmm...Cookie!

My little cookie monster!



We have been home for five days, and have enjoyed each one of them. Bryan is in Denver for another three weeks of training. Christian is doing so well! He is eating some fruits and has rice cereal in the mornings. He had his first cookie experience tonight at Grammy Whee's. It was adorable! Well, anything he does is adorable, but you catch my drift. His incision is healing well and all stitches are gone. We'll et some more pictures up soon... have a GREAT weekend!
Nicole
 

Sunday, April 20, 2008

WE ARE HOME!!!!!

Well, with all of us cracking the whip over some heads today we were finally discharged about noon. We went to lunch and then hit the road. We pulled into our (Grandma Whee and Pappy's) house at 5:15 and then Christian and fan club had another 25 minutes driving till they got home. It sure is nice to be back. I know we have more pics but will post them later. Lot's to do to get ready for work tomorrow.

Thanks for checking on us!

Grandma Whee

Saturday, April 19, 2008

Still here

Pappy and Kady playing with Christian.
Grandma Whee playing with Christian
It's tough being so stinkin' cute!
Plum tuckered out!

The view of Portland from the hospital


Well, we ended up staying another night. Christians doctors got a bit side tracked and forgot to lay out the discharge orders for us. SOOOOO hopefully tomorrow will be the big day. There is a ton of snow on the pass and of course we do not have our snow tires on any more. I am sure it is going to be a long drive home. I will let you all know what happens tomorrow...

Grandma Whee

Friday, April 18, 2008

Like It Never Happened!

Christian is doing wonderful! Only three days after surgery, his is almost back to his normal self; smiles and all! We took a trip with Gramma Whee to the 3rd floor cafe this afternoon and it was so much fun to have him with us! We were supposed to be heading home today, but due to some very minor fluid retention, he has to stay at least one more night. They did a chest x-ray, an echo and a blood test to see if anything was wrong, but all came back negative! We think that it was just a way for the nurses to keep him here. They have all fallen in love with Christian. Please leave a comment to say you stopped in! We'll update again either tonight or tomorrow.
Nicole

(Pictures aren't uploading at the moment, but I will add them as soon as I can)

Thursday, April 17, 2008

Thursday 11:30 am

Christian had a rough night. Not always him though. His IV monitor keep alarming and waking him up. He kept bending his arm and it would slow the flow setting off the alarm. So I got about 30 minutes of sleep. I am pooped.

Christian was able to get off the supplemental oxygen at midnight last night. Whoo Hoo! Now, this morning they have taken him off of the IV drip. They still have a small IV port on him but that is just to give him his meds when he needs them. He is still hooked up to the heart monitor but that is to be expected. He still has not pooped but he has tooted ALOT and boy are they killer ones!

This morning he was having a hard time and crying non-stop so I decided that he needed to be held. The nurse helped get him and all his wires and as soon as I picked him up he stopped crying and went to sleep. It was so sweet!

We went for chest x-rays a bit ago. He even sat upright for those and did not cry as long as he could see me. Another sweet time!

Nicole and Bryan came back at 11:00 well rested and ready for a day with the boy. Bryan is holding him right now and enjoying every minute.

So, that's it for now. I will do pictures later and post more news...

Hugs!

Grandma Whee

Wednesday, April 16, 2008

And we have moved again!

We are now on the recovery floor of Doernbecher's. Christian is doing so good! Everyone is amazed at how fast he is recovering. His color is totally different from before. He is now a nice pink baby as opposed to a blue baby. It is so nice to see.

Be sure to leave your comments so we can know who all popped in to see us!

Grandma Whee