Baby Christian

Baby Christian
Christian was born with two very rare congenital heart defects; Hypoplastic Left Heart Syndrome (HLHS) and Endocardial Fibroelastosis (EFE) He will require three (two down, one to go!) open-heart surgeries to sustain life. He is a miracle and a blessing. We are so greatful to have him here with us. Thank you for stopping in. Lilypie 2nd Birthday Ticker

Thursday, April 17, 2008

Thursday 11:30 am

Christian had a rough night. Not always him though. His IV monitor keep alarming and waking him up. He kept bending his arm and it would slow the flow setting off the alarm. So I got about 30 minutes of sleep. I am pooped.

Christian was able to get off the supplemental oxygen at midnight last night. Whoo Hoo! Now, this morning they have taken him off of the IV drip. They still have a small IV port on him but that is just to give him his meds when he needs them. He is still hooked up to the heart monitor but that is to be expected. He still has not pooped but he has tooted ALOT and boy are they killer ones!

This morning he was having a hard time and crying non-stop so I decided that he needed to be held. The nurse helped get him and all his wires and as soon as I picked him up he stopped crying and went to sleep. It was so sweet!

We went for chest x-rays a bit ago. He even sat upright for those and did not cry as long as he could see me. Another sweet time!

Nicole and Bryan came back at 11:00 well rested and ready for a day with the boy. Bryan is holding him right now and enjoying every minute.

So, that's it for now. I will do pictures later and post more news...

Hugs!

Grandma Whee

1 comment:

Jeanne said...

I hear the little guy isn't getting out today after all. . . that's too bad, I know you were probably looking forward to getting home. Keep me posted on how he is doing! Love to all!

Grandma Jeanne