Baby Christian

Baby Christian
Christian was born with two very rare congenital heart defects; Hypoplastic Left Heart Syndrome (HLHS) and Endocardial Fibroelastosis (EFE) He will require three (two down, one to go!) open-heart surgeries to sustain life. He is a miracle and a blessing. We are so greatful to have him here with us. Thank you for stopping in. Lilypie 2nd Birthday Ticker

Monday, August 4, 2008

Much Needed Pictures

Sleepy little man... so cute

Enjoying mom's 21st birthday cake
Little man loves his chocolate!

Hmmmmmm... had a few??? Nicoles 21st B-Day


Auntie Kady reading to baby Christian


Christian loves his caps! Ain't he a cutie?

Well here are some pictures for your viewing pleasure!

Nicole and Christian came over tonight for a special dinner and birthday cake. Nicole had her 21st birthday on July 30th and Kyrsten had her 15th birthday August 4th. I made crab, shrimp and mushroom stuffed prime rib steaks on the BBQ for dinner and then we had banana split cake. Yummy!!!!!

Thanks for popping in and checking on us!

Grandma Whee

Tuesday, July 29, 2008

Time flies!

Well, again I have no pictures. My camera is in Pappy's truck, but I decided to post anyway...

Well, we have found out some bad news recently. Christian was diagnosed by the neurologist with Cerebral Palsy. It is the mildest form, but sucks nonetheless! The doc says that really the only thing we may notice is Christian might show slight clumsiness. Hopefully we will be getting more info soon as we have contacted the United Cerebral Palsy organization and they gave us some contact numbers of local people to call.

We spent all of last week at Wickiup Reservoir. A great time was had by all! Christian got to come out one day and enjoyed the shade with Pappy while mommy and Grandma Whee fried their skin off sunning out on the lake. I am sure some skin with grow back now that the blisters are gone and I am slightly less lizard like.

Bryan is looking into some employment closer to home. Hopefully it will come to fruition. He sure is an awesome guy, probably a genius too. And talk about a looker!! Also there is talk of possibly a move to Sisters. I have my fingers crossed for that!

Well, that's about it for now. I will have Nicole add some pictures when she gets a chance.

Thanks for popping in!

Grandma Whee

Thursday, July 17, 2008

Laine Harper

We had a response to a post from a Laine Harper. Unfortunately there is no link back to her. We want so much to get in contact with her. Please, if you know Laine Harper e-mail me directly at d_dwheeler@yahoo.com (there is an underscore between the two d's)

We just want to be a support for her and her unborn baby...

Denise (aka Grandma Whee)

Monday, July 14, 2008

Eight Months!

Our little Christian is eight months old! Wow how time flies! He just started teething again... working on his eye teeth! He came down with viral diarrhea and has been miserable the past three days. The doctors gave me some tips and put him on a special diet until he starts feeling better. His poor bottom is so raw:( Good news is he's crawling! This child is EVERYWHERE!!!! Seriously, there is no need for me to hit the gym when I run around all day chasing after him! He has started saying mama and dada... but usually only when he's crying. Oh well, I'm excited none the less! He's doing great heart wise. Although he is eight months old, he is the size of a three month old. It's the funniest thing to see a baby so small crawling around! I will post pictures as soon as Bryan brings my camera back! Until then, enjoy the weather and thanks for stopping in!

Thursday, July 3, 2008

Baby in the water!

Looks like he is really concentrating!



Goofy little smile... LOVE IT!


Baby and Daddy...

We took Christian, mommy and daddy to Eagle Crest for a day in the pool and sun. Christian seemed to really enjoy the water a lot! We had a great time. Christian got nice and tan while I (Grandma) got totally fried! He really enjoys the water and splashing. It was a wonderful day and we are all so thankful that he is well enough to go places with us.

Christian is now 13 pounds! He is growing like a weed. He really enjoys his food. Especially bananas.

Thanks for popping in!

Tuesday, June 10, 2008

Found a Cute Picture!

Well, take out the goofy looking grandma and we have one super cute picture! Doesn't it look like he is giving that all innocent look? But we know better! I have discovered that I can take semi-ok pictures all by myself. I thought my arms were too stubby, but guess not.

Ohhhh... he had a doctors appt and he is now 12lbs 13oz and they took his feeding tube out. He is nose-noodle less now! YIPPEE!!!!! He is so cute.

Thanks for stopping in!

Grandma Whee

Monday, June 9, 2008

My Little Man

Maybe chewing these fingers will make me quit crying!
Little man knows how to attract the chicks!
Christian is getting so big! It seems every time I see him he is so much bigger! He is sitting up by himself. He is standing supported. Now maybe he will get some hair back! He is so bald! But thank goodness I love a bald head!
Bryan is gone until tomorrow. He has been gone for 4 days flying. Nicole will be happy to have him back. Christian has decided that he likes to scream. Real loud. Often.
I got to babysit Christian the other day. It sure was fun. But for a little guy with just half a heart he sure has a full set of lungs! He does a scream that makes your ear drums hurt. I am not exaggerating. They actually vibrate so hard that they hurt! I think my hearing is going to be damaged if he does not stop that pretty soon.
Tonight we are bracing for snow. Can you believe it??? Here it is almost the middle of June and we are expecting snow! I had to go out and cover all of my flowers and plants. I have to work the rodeo (remember, I am a medic) this Saturday. I hope it is warmer by then.
Anyway, thanks for popping in and checking on us. Things are pretty smooth going for the little man now. It is just a big waiting game.
Take care!
Grandma Whee