Back from San Francisco...

I know, I know... you are wondering why it was not posted that we were going to San Francisco. Well, there is a good reason. It was decided on Wednesday afternoon that we would go to San Fran Thursday morning. So, between packing, planning, and general pandemonium I did not have a chance to update the blog. Then when we were there I did not have wireless internet anywhere! I was very frustrated!

So, this is what went down. Wednesday we heard that the state was not going to pay for the procedure. We were LIVID! So, we decided that after reviewing the information we had that the in-utero surgery was a must have and we would all chip in what we could to get it done. So we flew to SF on Thursday morning and we were scheduled for a full day on Friday filled with testing and meetings.

Friday we all gussied up and headed to the hospital. Nicole had an Ultrasound that was very in-depth and took over an hour. Then the doctor came in and did another scan and was impressed by the baby's brain (I assured him that the baby got that from me!). We then went to the fetal treatment center and was then sent to the echo lab where they did a fetal EKG. There has been just a bit of decline in the heart's health over the past 2 weeks. We met with the perinatologist (before the echo) and she informed us that UCSF has done the suggested procedure only 3 times and with each case the baby died during the procedure! We were floored as this was NOT the information we had been given before! After the echo the entire team of surgeons, ped. cardiologist, and other staff was gathered and we had a meeting to determine our best course of action. Needless to say, the kids made the decision to forgo the in-utero procedure since the track record is not too hot!

So, now we are going to wait for the baby to be born and then he will begin undergoing a 3-step surgical plan that will leave him with just one ventricle and then will be a candidate for a transplant later in life. How much later? We just do not know.

That's our update for now. I know it is a lot of new information and the kids are doing such a fantastic job of handling this situation.

Thanks for dropping by. I will post information as it comes in regarding doctors appointments and such.

OHHHHHHHH... Bright Spot Juice and Java is hosting a fund raiser for baby Christian on August 25th. They are donating 1/2 of all proceeds of the day. We also get to make a brochure and set up a table with donation jars. The radio station I listen may be doing a remote broadcast from there also! Can you believe it????? What a wonderful woman Deri is for doing this for the baby!

That's all for now!

Grandma Wheeler