Baby Christian

Baby Christian
Christian was born with two very rare congenital heart defects; Hypoplastic Left Heart Syndrome (HLHS) and Endocardial Fibroelastosis (EFE) He will require three (two down, one to go!) open-heart surgeries to sustain life. He is a miracle and a blessing. We are so greatful to have him here with us. Thank you for stopping in. Lilypie 2nd Birthday Ticker

Saturday, December 1, 2007

New stuff






Well Christian is doing better and better every day. I know I have not posted in awhile but my computer is not working well for me now. Absolutly hate this free wireless connection! I am going to end up plugged into the wall again!
Anyway, I will be posting more pictures this afternoon. But here is the scoop... Christian has been moved back to the other hospital for the remainder of his stay. He now has no tubes other than his feeding tube. He got everything else removed yesterday. Obviously these pics are from before yesterday, but I was behind! He has to learn how to eat again and then gain a bit if weight and then he can go home. So we are looking at a week or 2 at best. But all in all he is doing great. The docs are not concerned at all about the clot he had in his heart nor the collapsed lung and fluid. I am so please that he is doing so good now. For awhile it was something bad everyday. A bit depressing during that time.
I think I will make the trip up there next weekend to hold my little guy. I sure do miss him. Ohhh, I miss Nicole and Bryan too but they do not let me hold them and stroke their hair.
Thanks for checking in!
Grandma Whee

No comments: