Baby Christian

Baby Christian
Christian was born with two very rare congenital heart defects; Hypoplastic Left Heart Syndrome (HLHS) and Endocardial Fibroelastosis (EFE) He will require three (two down, one to go!) open-heart surgeries to sustain life. He is a miracle and a blessing. We are so greatful to have him here with us. Thank you for stopping in. Lilypie 2nd Birthday Ticker

Wednesday, November 28, 2007

News from Nov 27th




Just got the update from Nicole along with some pictures. I am always excited to see my little man!


As you know, Christian was having trouble oxygenating and also had a bunch of fluid in the chest cavity. Well they think that he actually had a collapsed lung. But with the "Pigs in Space" placing positive pressure in his lungs, it re inflated, he is oxygenated better and any fluid started going away. So now the mask is gone, the feeding tube is gone, and he is just looking so stinkin cute! They are working on re-teaching him how to eat. That will be wonderful. Advances like that are what is needed to get him home.
Nicole says that they will begin weaning him off of his blood pressure meds now. When he is off of those he can move back to the NICU at OHSU hospital and work on coming home. Don't you know that will be a grand day! I should check on having a parade! Just kidding. Not that I don't think he needs one, I just think they will not comply. Stinkers!
I need to update the newspapers and the radio station that have been following our story. They will be excited to know that Christian is doing so well.
Thanks again for popping in. You may not realize how much your comments mean to us all.
Grandma Whee

5 comments:

nwscrapmom said...

He looks wonderful without the tubes and everything! What a cute little mug. When are you headed back over to see him? Glad to hear the heparin is doing its' job. Take it easy!

Anonymous said...

Good news just keeps coming! That's great! I love the pic of Christian where he looks grumpy! Who could blame him?

Denise said...

He looks fantastic!! What a cutie pie he is. Keep the updates coming, I am enjoying the good news.

Anonymous said...

He looks great. I'm so glad to see that the med is doing its thing. His funny faces are so cute, I love them.

Anonymous said...

It's great to see that Christian is doing well. I had double bypass surgery in May 2007, at the age of 31. Although we had different types of heart surgery, we both have a reminder of our experience, a nice big scar down our chest. Lovely.