Baby Christian

Baby Christian
Christian was born with two very rare congenital heart defects; Hypoplastic Left Heart Syndrome (HLHS) and Endocardial Fibroelastosis (EFE) He will require three (two down, one to go!) open-heart surgeries to sustain life. He is a miracle and a blessing. We are so greatful to have him here with us. Thank you for stopping in. Lilypie 2nd Birthday Ticker

Tuesday, April 15, 2008

We are in our room now





Christian is starting to wake up a bit now. He looks so tiny in this big boy crib! He is puffy and a bit snotty and drooly but still super cute. They are going to see about extubating him later this afternoon or evening. That would be nice. Nicole and Bryan are doing very well. Bryans mom showed up at noon and we have had a great time oogeling the boy. I think I am going to be staying tonight here with Christian while everyone else goes and gets a good nights sleep. I will post through out the day...

Grandma Whee

6 comments:

Jeanne said...

Thanks for the pictures...he looks pretty good, all things considered.

Grandma Jeanne

Anonymous said...

He's beautiful... get some rest family.

Anonymous said...

I hope the surgery was successful and that he will heal well. Mommy looks so brave in the picutres.
-Kathy

Anonymous said...

Glad to hear things went well. He does look pretty good in the pics considering what he's been through. Thinking of you lots today and will pray for a comfortable night for the big guy! Eric, Julie, Hunter and Jackson

nwscrapmom said...

I'm so glad to hear that he is doing so well! How long are you going to be staying in Portland?

Anonymous said...

Xavier and I thank you for the special suprise gift. It was hadmade and thoughtful. We are glad Christian's journey is moving forward everyday.
My family, and especial Xavier sends his buddy best wishes. Again thank you for caring , and I will be sending love to both our boys.