Baby Christian

Baby Christian
Christian was born with two very rare congenital heart defects; Hypoplastic Left Heart Syndrome (HLHS) and Endocardial Fibroelastosis (EFE) He will require three (two down, one to go!) open-heart surgeries to sustain life. He is a miracle and a blessing. We are so greatful to have him here with us. Thank you for stopping in. Lilypie 2nd Birthday Ticker

Sunday, November 18, 2007

Nov. 18th



Christian got his first bath this evening! Typical for a boy, he did not enjoy it. Not one bit! And he let us know about it too. He yelled and squealed so loud! It was so nice to hear. Of course we say that now. Wait for a few months and see if we still think it is cute! I was so happy to see his eyeballs! We had not seen them before. They are a real nice shade of blue. Hopefully they will stay that way. One of the pictures I put on has him making a funny face. I thought he looked shocked. It was so cute.

He is going in first thing in the morning for the surgery. They will be taking him at 7:00 am. We are all nervous as heck, but know things will be fine. We will be in the PICU at Doernbechers for a few weeks and then moved back to the NICU at OHSU again for a few weeks before coming home for a month or so before his next surgery.


I will post more as we know things. I will warn you though that the next pictures may be too much for some people. He will be on a by-pass machine and hooked to tubes everywhere. He is going to be one sick little baby. But keep checking on us!

Grandma Whee

3 comments:

nwscrapmom said...

Hey...
What cute pictures! He's so adorable. Thanks for taking the time to update. Hopefully everyone will be able to get a good night's sleep tonight. I know tomorrow is a big day, but also know that we're praying in a big way. Wow... you are all going to have a LOT to be thankful for this Thanksgiving, won't you?!?! That is great news on the surgeries potentially taking care of any problems and negating the need for a transplant. I certainly pray that is the case. He seems like such a strong little guy, so I know you can expect great things from him!
((HUGS))
Kit

Little Things said...

I'll keep Christian and the entire family in my prayers - I hope the surgery goes smoothly today.

Anonymous said...

Praying for you guys today. Thinking good thoughts for Christian and hoping everything goes well with his surgery today. Will check back with you later.

Julie, Eric and Hunter